Mundane

I started to write this post earlier this afternoon when I arrived to the hospital and I titled it "pissed off". There was no other way to say it. Alex was scrunching up her face, trying to let out a cry, and breaking through her restraints. We had to tuck her in bed like a burrito since the restraints weren't working and she really didn't like that either. It's hard to see her like this, but it beats the alternative of her pulling out an IV or even worse her breathing tube. After about an hour of squirming her nurse gave her some tylenol and she calmed down. She visited with some family for awhile and she's been sleeping for a couple of hours.

Many of you have asked if we have an idea of when Alex will come home but unfortunately we are still unsure. We just have to take things day by day, something we've learned how to do quite well over the past year. Her crit levels are looking good, but her CO2 levels are up again which means the weaning of the vent will be put on hold for now. They plan to put in a PICC line (peripherally inserted central catheter) tomorrow morning which allows for intravenous access for up to 30 days. She currently has a central line and another IV in her foot but to decrease the chances of infection they will both be pulled tomorrow. Some of you may remember Alex having a PICC line placed last December for a couple of weeks so that she could receive IV antibiotics at home. The nice thing about a PICC line is we don't have to worry about having her poked all the time or the IVs collapsing.

We want to thank Dana Logue for helping coordinate meals with our church and small group and we certainly appreciate being well nourished :) We want to also thank the family and friends who have visited us here at Children's and brought us goodies. We thank God for all of the people supporting us and showing their love through the blog. You have all touched our hearts and the power of prayer and HOPE is so evident to us each and every day.

Peace and Hugs,

The Diffees'