Thursday, August 14, 2014

First tooth fairy visit

Alex has been doing really well since being home.  Yesterday evening she had a scope done under anesthesia to see if they could avoid having to do a full on revision of her surgery but unfortunately they were not successful in correcting the problem.  There was too much inflammation to take her to surgery last night so she'll undergo a surgical revision in the next couple of months.  
The more exciting news of the night was Alex lost her first tooth!  She had a loose tooth that was ready to come out when we arrived for the procedure so the anesthesiologist pulled it out (so she wouldn't inadvertently swallow it or bite down on it).  Mommy wasn't prepared for this but all is well now.  The tooth fairy came to our house and as Ryan put it, "paid Alex money to grow a new tooth." 

My little girl is growing up 


Sunday, August 10, 2014

Until next time

Headed home to enjoy a Sunday afternoon together as a family 

Saturday, August 9, 2014

Moving on up

Alex has been doing well since her transfer up to the floor.  She hasn't spiked a fever today which is good and she's in great spirits.  They decided she can go home on oral antibiotics which means if everything goes well tonight and she doesn't have any more fevers, we can go home tomorrow.  She'll have to come back in a few days for her surgical revision but it will be nice to be home until then. We are so happy to see Alex smiling and healing from her infection.   

Friday, August 8, 2014

Some people are worth melting for - Olaf

Alex is still hanging out in the ICU spiking fevers but overall feeling better and back to being her cute self. We are making progress in the right direction, so much so she's transferring out of ICU to the floor today. Alex has been awake and alert watching Frozen a couple times a day and chatting it up with all the nurses and medical team. She's a "hoot" as some would say and has the funniest sense of humor.

We are not sure how long her stay will be and are waiting to hear if she'll stay on IV antibiotics or transition to oral antibiotics. She will also require a medical procedure/revision involving her bladder next week due to complications from her recent surgery.  Hoping for a speedy recovery so we can enjoy the rest of our summer before school starts back up and it's Frozen outside.  

"I'm Olaf and I like warm hugs"
Thanks for the balloon Nana

"I don't know if I'm elated or gassy, but I'm somewhere in that zone" - Anna of Arendale

"Let it go" - Elsa 
Lauren and Nathan - we love the Frozen balloon

Thursday, August 7, 2014

Another PICU visit

It's been one long week for Alex and our family.  Alex was having symptoms of a urinary tract infection (UTI) over the weekend so after an emergency department visit she was put on antibiotics and we were sent on our way. She seemed to be feeling better, until Tuesday when things went downhill fast landing her right back in the emergency room.  After a many tests, pokes and prodding (I'm not kidding, she has an IV in her neck) she was transferred to the pediatric intensive care unit.  Tests came back last night showing Alex has urosepsis, a severe bacterial infection that starts in the urinary tract and spreads into the bloodstream.   She's being treated with IV antibiotics and is in the best care.

Mommy has been working many night shifts in a row and daddy had also been on nightshift duty with Alex several nights so we are two sleep deprived, slightly delirious, parents. We've been taking turns napping and of course hanging out with Ryan at home. I woke up this morning in the ICU, confused of where I was.  My brain is definitely still trying to catch up to what's happened and to the realization that Alex is in the ICU.  We certainly did not see this coming or expect to be in the hospital.  We appreciate all the prayers and love everyone has been sending...keep em coming.