Sunday, December 27, 2009

Christmas 2009

Just waking up

Alex loves her new Elmo book


A new friend

Can you tell Alex adores her dada?

Christmas 2009

Hope everyone had a great Christmas. Jimmy and I hung out with some family on the night of Christmas Eve while Alex stayed home with her sitter. Although it would of been nice to bring her along, it's too risky to have her around a lot of people, especially kids. Our original plan was to travel to Tulsa for Christmas, but we decided to play it safe and stay home this holiday.

The three of us hung out at home by the fireplace on Christmas day. We opened gifts, watched movies and relaxed. What a change from the busy weeks leading up to this time. We had no places to be, no work or school, no appointments or therapies and no health concerns. It was truly peaceful and calm.

Last year Alex slept through the excitement at Christmas, even opening gifts. This year she decided to continue the tradition & literally fell asleep playing with tissue paper. It was so sweet and we happened we catch it on video:

video


After her nap.....

video

Tuesday, December 22, 2009

Winter Update







Just wanted to post a few pics and let everyone know we're doing ok. As with most people during the holiday season, we're super busy. Not so much with shopping and holiday parties but more with work, doctor appointments, therapies and keeping up with things at home. Alex is getting over another UTI and having tests done since she has completely fallen off the growth chart. Don't know too much at this point other than she will be seen at Children's in January for further testing. She's also gotten the flu shot, H1N1 and synagis shot for RSV. Actually the synagis is a once a month shot at a special clinic so she has another one scheduled for tomorrow. I think we've built up our defenses the best we can so we'll continue the lock down and pray she stays healthy. Say a prayer for us because the lock down situation is very challenging at times and can make us feel isolated. We know it's temporary so we try to focus on that and really look forward to warm weather.

Alex has a few teeth coming in and loves to chew on her oxygen tubing so thought we'd post a few pics. Wishing everyone a Merry Christmas and may the new year bring us all Hope.

Love,
The Diffees