I wish there was more to report, but it seems like things are pretty much stationary right now. Good news is that she hasn't been getting worse. There has been talk of a blood transfusion to get her "crit" (red blood cell) levels up. They have been drawing quite a bit of blood for tests and she's just not replenishing it fast enough. My solution is to just stop taking it out, but i guess they need to do it to stay on top of any new bacterial infections. And of course as i write this they're drawing more blood in order to determine whether to make any adjustments to the vent.
When I arrived this morn i was so excited to see her eyes open. Not much, but she was awake. So I talked and sang to her, and suctioned the druel out of her mouth (which she seemed to like, since it created a soothing suction in her mouth which she can't get herself w the breathing tube there). This may not seem like much, but it pretty much made my day. She been so snowed lately that it's as if our Alex has been in a coma - not really responsive to anything we do. So this was at least a glimpse of her personality. We really miss her.
5 comments:
So glad to hear just a tiny little thing, like opening her eyes just a tad. Just knowing one of her favorite people is there must make her smile on the inside, even if it doesn't show on the outside.
Love you 3 lots.
Nana Carol
O! We miss her too - especially seeing those "Diffee eyes". They just make you melt! Thanks for the update. Just knowing things have not worsened is very comforting. Hang in there Diffs!
~Auntie Natalie
Alex looks like she is at peace. As God's angels are looking over her. I have been praying for her and the doctors. I have asked God to place his "Healing Angels" around Alex and also around the doctors that are caring for her. I have also prayed for Nicole & Jimmy for strentgh during this trying time. As I have a step son who has Cystic Fibrosis and many other medical issues and I have been in your shoes with hospital stays, etc. I work with Grandma Kathleen and we check the blog constantly to see how her progress is going. I also have placed Alex into our prayer group in CA.
Take care and we are praying for all of you!
Deborah Paiva
YIPPIE!! Every little thing counts! Hang in there. Cynthia GW
Glad to here she showed her daddy some love :) The Diffee's continue to be in our thoughts and prayers.
Love- cousin Rachel
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