After our post yesterday, Alex slept the rest of afternoon and evening. She had a pretty good night and is doing well this morning. They had to turn her O2 up last night and we will find out once the docs round if they plan to change any of the settings on the vent today. They are still giving her meds to keep her asleep since she doesn't seem to do as well when she's awake. It's probably a combo of her getting anxiety and getting worked up when the RT's give her the breathing treatments or the nurses mess with her. As they wean her off the vent they will also wean her off the drugs and try to get her on a regular schedule with eating, sleeping, etc.
We'll keep you posted. Please say a prayer for our little fighter and for her parents. She's been on the vent for a week now and it's been even longer since we've been able to hold her. We are really missing her.