Alex has been sleeping most of the morning and seems to be comfortable this afternoon. As Doctor Handler put it, she is behaving herself. We have learned to recognize the cues she gives when she's feeling pain and seeing them yesterday about broke our hearts. It's a huge relief to see her in better spirits today.
They have weaned her off the Fentanyl (pain killer she took after the surgery) and are giving her tylenol every 4 hours. Her red blood cell count is normal which means that they don't suspect any internal bleeding. This was a concern for the neurosurgeons as they felt that right after the surgery she drained a significant amount of fluid too rapidly which in some cases can cause a major headache and/or bleeding. Because of this incident, they will continue to monitor her progress, watch for infection over the weekend and postpone the shunt surgery until Monday. We'll keep you posted as things can always change based on how well she's doing.
Alex is tolerating her feedings through a tube today which is great news. One step closer. She is still on the ventilator and hopefully will be extubated tomorrow. She's struggling a little today with her heart rate dropping when lowering the rate on the ventilator but the nurses feel she just needs a little more time before removing it. That's about it for updates. Please continue to pray for a healthy and complication free recovery before her next surgery.