Thursday, March 12, 2009

Today has been a pretty good day

We have sunlight shining into our room and Alex is peacefully napping. She had two more opportunities this morning to practice eating with her bottle. It's amazing to see her progress each session, even if it's just the littlest improvement. We are so proud of her. It really takes so much energy and work for her to do the simplest of tasks. Plus, you don't exactly get the best rest around here. Isn't there some type of saying that you get well in the hospital and rest when you get home? Not sure if I just overheard a nurse say that once or if I just made it up but regardless, it's true.

Alex has seemed to hit a plateau of sorts and is stumping the docs once again. Overnight her O2 was increased slightly and she had a borderline fever. When the docs mentioned to me that maybe she has another viral infection, I about fall out of my chair. Not only is the mucus making itself at home in casa de Alex, but feels like we might be taking up permanent residence here in this hospital room.

Alex is doing fine today, no fever and her x-ray last night did not bring up any red flags so that's a blessing. So I guess we just keep a close eye on her. The swallow study has been pushed off until tomorrow which is not a bad thing. She's just not quite ready and having more time to work with OT will give Alex a chance to develop a stronger suck and try different bottle systems. We are really hoping the study goes well as it can have a lot of different outcomes. We appreciate the prayers and know that God hears every one of them.

6 comments:

Anonymous said...

I'm glad to hear Alex is having a good day... where are the cute pics of her??? She is such a sweetie. I send prayers and hugs your way.

Love-Cousin Rachel

Anonymous said...

I'm so happy to hear that Alex is doing so keep up the good work Alex. Love Mrs.Leah

Anonymous said...

praying for tomorrow's suck study! Go Alex!

Claire

Unknown said...

Wow, great pics. She's smiling a lot more. She must realize that spring is coming and that she needs to be home for some family hikes and camping! We're always thinking of you,

Andy and Co.

Anonymous said...

I know it's got to be getting hard to keep your chin up, as it seems even to me that you've been in the hospital forever, but know we are thinking of you and praying for progress. Please let me know if you need anything.

Krista and Eric

Anonymous said...

Glad she is hangin on still! Cant wait until she is out of the hospital and we can see her more. She is definately a fighter!
~Auntie Natalie