Although we've had some setbacks, today has been a bit brighter. Yesterday was draining for all and we just needed a good nights rest. Overall, Alex is doing well on the CPAP and we are grateful she is not back in the PICU or on the vent. Her little body just got overly tired fighting off the secretions and she needed a break. The docs did confirm that she has another UTI so they started her on antibiotics. Although she's still pretty fussy, she has been taking good naps throughout the day and enjoyed afternoon story time in momma's lap.
Thanks for the encouraging posts. We needed those. We are looking forward to the sun coming out so our little baby girl can ride her bike again :)
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March
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- Shades
- Out shopping
- 8 months old
- Beautiful weekend
- One big happy family
- Blubbers
- Hanging out at home
- Home again and busy
- A great night of sleep
- Finally heading home!
- We are being discharged tonight
- Homeward bound
- I love my ba ba
- Swallow study
- Fat n sassy
- Alex gets a sponge bath
- Today has been a pretty good day
- Can I go home?
- Busy Bees
- Playtime
- Our baby girl is still smiling
- Stretching out
- Name this video...
- Peddling Fast
- A rough night, but a better day
- Taking a break
- Mucus: 5 - Alex: 3
- A little discouraged...
- Protest
- Our happy girl is back
- In transit
- Day 21
- Out cold
- The best medicine
- Resting
- She's still breathing great on her own today -
- Pretty good day
- Our feisty little trooper
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March
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7 comments:
hi diffee, hadn't visited your blog for a while and was reading up. just letting you know we are thinking of you and sending blessings your way. that little girl, she's a rockstar for getting through all this.
Nicole & Jimmy I know how heart breaking this journey has been for the two of you. Just know that the two of you are amazing parents! Alex couldn't ask for two more amazing people to support her and fight with her! She may be little but she is as strong and determined as the two of you to beat this and make you proud! She will be back on her bike soon! In the mean time we will all be here to support the three of you in what ever direction she decides to ride! We are all praying and glad we can share and support you during this time! Love you all! Jenene ;) xoxoxoxo
Hebrews 11:1 Now faith is the assurance that what we hope for will come about and the certainty that what we cannot see exists. Keep presing on. Cyn GW
I hope all 3 of you had a restful night.
Love,
Nana Carol
Hoping today is a great day for you all! Keep your heads up!
~Auntie Natalie
It was great to see little Alex resting yesterday afternoon. We pray for strength and endurance for all 3 of you (and wish we could pass a little of Calvin's energy your way!). Hope you're enjoying the new digs!
Krista, Eric, Calvin and Lucy
Wish there was a magic wand that could make this all better. Continued prayers for strength and bright days ahead. Jana Jones
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