It ended up being a long day with Alex. Something was bothering her all day and it was tough trying to figure out what it was. Are they weaning her too fast, is she having withdrawal, is she hungry, does she have reflux or gas, or is she just feeling icky? At times she was inconsolable which was hard because I just wanted to make it better. Feeling helpless is the worst. Tylenol and pain meds only seemed to help for short periods of time. Most likely she was hungry and it took the entire day for the docs to consult the dietician, change her feeding schedule, make sure she tolerated the new schedule, and put in an order for an increase. She finally got the extra ounce during her 11pm feeding.
An OT (occupational therapist) visited Alex today and worked with her to see how she would do drinking from a bottle. She had a hard time latching on due to her suck being really weak and they said it often takes little ones some practice to coordinate sucking, swallowing, and breathing again. They will continue to work with her each day to transition her to bottle feeds. PT (physical therapy) also stopped by but didn't get much further than asking questions since Alex was not in the mood. Soon after these visits we learned that Alex may have another UTI. They are not 100% sure so they took another urine sample tonight. I try not to get discouraged when I feel like we are taking two steps back but it's easier said than done.
Alex was happy to see her daddy arrive this evening and was smiling at his barking noises and other tricks. He has an amazing calming effect on her at times. It made it easy for her to finally fall fast asleep in mommy's arms. I cherish those moments and know we won't be able to hold our baby girl like that forever.
It's midnight now and Alex is awake and rooting. Guess she wasn't ready to go down for the night...although we are.