Alex is sleeping peacefully after a long day. What we thought might just be an overnight observation has turned into more than that. We think she may be released soon, but it really just depends on her secretions (as usual). She's been pretty fussy this evening, which may be a result of a new med they've put her on for 5 days - Prednisone (an immune suppressant/anti-inflammatory drug w/quite a few side effects). Personally, I don't know why everything just necessitates a new drug - when nothing really seems to fix the problem. I guess that's just the nature of Western medicine. It's pretty frustrating, though, when every time we bring her in it's a new set of docs and opinions.
We have a Primary Care Physician, but she doesn't even know when Alex is in & out of the hospital. It's been months since she's even seen Alex. I guess the closest thing we get to a holistic approach is when we bring her in to the Spinal Defects Clinic, which is every 3 months. And even then we're seeing a bunch of docs from all different specialties, each diagnosing based on their respective areas.
Sorry to sound so negative - we really do have a lot to be thankful for. After such a great few weeks it's just really hard to have to come right back into the hospital, and seemingly with more questions than answers.
Please pray for Alex to beat this cold, as well as wisdom for the Dr.s in assessing the big picture. And for strength & patience - since we are definitely not finding much comfort in the hospital right now.
10 comments:
Hi guys,
I was so happy to hear you finally made your Telluride trip! But so sad sweet Alex is back in the hospital. Hang in there, stay proactive, and keep asking questions. Alex is so blessed to have a mommy and daddy who are so in tune to her needs and who make sure she always gets the very best care.
Hugs to all...
Love,
Aunt Nadine
Hi,
I'm sad to hear the news :( but hang in there. Alex is very strong and I have no worries she will get through this just as she has in the past! :) Sending my love your way. Keep us posted! I'll be checking in on angel baby.
Love,
Aunty Lauren
Hang tough. I know it's hard and frustrating but it will all be better soon and you will take our Warrior Princess home again. Praying for you all.
Love,
Nana Carol
Hey Diffs- Thinking about all of you and sending my love.
Cousin Rachel
bummer to hear she's back at childrens - praying they find a 'fix' soon! hang in
Lauren Heyl
Hi Nicole and Jimmy,
So sorry to hear that sweet Alex is back in the hospital but I'm praying she will come home soon! It's so understandable to be so frustrated--anyone would be!!
You guys are such great and loving parents:)
Lisette
Sorry to hear Alex is back in the hospital. We were looking forward to seeing you this weekend. We will continue to lift the three of you up in our prayers. Hang in there and know we love you all lots!!
The Gingerich Family
Hi Jimmy&Nicole,
You guys hang in there I will keep the three of you guys in my prayers. Alex will pull through this like always she is a strong baby girl.I miss seening Alex at the day care.I will pray that the dr.s give you guys the right answers so that you guys can get through this love you all. Love Mrs.Leah
Gosh, it's so tough not having certain doctors to trust in. We have 3 drs (all different specialties) who we really trust and listen to more than any of the drs. that come in and out of Autumn's life. We can even get each opinion about one issue to help us determine what is going on. Praying for you all....hope you are out so you can all spend the 4th together.
hang in there its tough not knowing. keep on top of the doctors. we were so lucky to have very good dr. here in tulsa for tyler. at the childrens hospital. things well get better. well keep you in my prayers.
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