We've been looking forward to the holiday weekend and hope we won't be watching fireworks from the 8th floor of Children's. We'd been planning to go to Tulsa for a wedding but don't think we're going to make our flight tomorrow morning. Ok, we are def not going to make our flight tomorrow but it doesn't hurt to pretend we might, right?Alex doesn't seem to be getting any better yet but should be turning the corner any day now (heard that one before?). The steroid she is on (Prednisone) is making her really fussy and irritable - not fun for anyone. We've been asking a lot of questions and working with the docs to get to the root of her chronic respiratory issues. It's going to take time and require more tests on her immune system, a scope of her throat and a CT scan of her lungs. Most of this will need to be outpatient and done when she is not so sick. They've also ordered an MRI to follow up on her recent sleep study. A lot to follow up with and hopefully some answers.
This probably goes without saying but we are tired. These hospital stays really do take a toll on us. We know God has good things in store for Alex and our family and we count our blessings every day and try to stay focused on the positive. It definitely helps to have so many supporting us & praying for us.
1 comment:
i'm sorry that you have to spend and holiday in the hospital. i think of your family everyday hoping and praying for a speedy recover for alex and you guy's. god does have a plan and we never know what that plan is. sometimes it hard to stay positive and strong. alex was a blessing brought into your lifes and will continue to be many more blessing to come. she has great parents.
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