Lots of g-tube and bi-pap teaching before we go home. Equipment for home had to be lined up before a discharge plan could be made and we were told it could take as long as Friday or Monday to get everything lined up. Ugh. Luckily the medical team worked diligently and reps from two different home healthcare companies came to the hospital yesterday to drop off equipment and supplies we'll take with us. This moves our discharge date up to this afternoon. The nurses are having me doing all of Alex's g-tube care and the respiratory therapists did cut me loose with bipap. Setting it up is easy but getting a good seal on the mask is next to impossible. Alex tolerates it really well which is half the battle so we are thankful for that.
Alex is in spirits and seems to only be in mild discomfort from the surgery. She has a million follow up appointments the medical team is setting up for us including bipap clinic, g-tube clinic and another visit to the sleep lab for an overnight sleep study to titrate her bipap settings. It's going to be a busy spring for the Diffees. We love to hear from all of our friends and family and appreciate the love and encouragement we read from your comments. Until the next post....
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1 comment:
Thank you for the detailed post. I am praying for your family.
You are all so strong.
Sending hugs to you,
Love,
Lauren
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