We've been enjoying our summer...trying to pack in as much as we can. We recently got back from camping at Red Feather Lakes for the weekend. Several weeks before that we took Alex to her 2nd music festival - the Folks Fest in Lyons. We actually enjoyed it quite a bit more than the Bluegrass festival, as it was a lot more family-oriented. I'll post pics soon, just don't have them handy right now.
We also had some tests recently which determined that Alex is still aspirating, although it's not certain if it's her food she's aspirating or her own secretions. Of course, the docs are bringing up the G-tube (feeding tube) as a potential solution, but we've decided that we're not going that route unless there's no other option.
She also had another MRI, but despite our calls to the Neuro docs, we still haven't heard any results. Guess we'll just have to wait for them to get around to us. No news is good news, right?
It's hard to believe summer is practically over now. We definitely have made the most of it, but we're dreading winter and another season of respiratory infections. Add to that the concerns about Swine Flu (which targets the respiratory system), and we're certainly planning on keeping Alex on lockdown.
Anyway...just wanted to catch everyone up. Sorry it's been so long. We have a ton of pics to post soon, once we can get them on here.
Until then...
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7 comments:
good to hear from you guys- i think about you guys all the time and I just absolutely love little Alex!
I thought you forgot about us... Glad you guys are enjoying your summer. Thanks for the update I've been thinkin about you guys. Hope to see you soon! Love ya Jenene;)
I've been checking in too and have been happy not to see any updates, as I've assumed it means you're too busy living well to comment - looks like I was mostly right! Thinking of you all...
Glad to hear from you guys.I was thinking about you all. I'm glad you guys had a great summer happy to know that Alex is doing good. I can't wait to see the picuter. love Mrs.Leah
Nana is back home and missing all 3 of you lots. Hugs for all of you.
great to hear from you. sounds rough to be waiting for answers, and I hope this winter fairs better for the little gal.
we've been dying to go camping and were planning on it this weekend, but it's too hot again! happy for you that you got to enjoy some.
Great to hear all is well. We missed hearing from you.
Love and miss you guys
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