It's ironic that the last time we posted was when Alex was hospitalized last summer. Seems lately that's the only time our life has slowed down enough to blog. Last Friday Alex came down with a respiratory illness and she started going downhill by Sunday afternoon. By Monday her condition deteriorated quickly and she ended up in the ED at Children's via ambulance. I was working so I was able to meet her in the ED when she arrived. She was admitted to the PICU with a confirmed case of H1N1 flu and here we are. It's day 4 and Alex is still needing a lot of respiratory support. She's on continuous bipap through a nasal mask (same one she wears at night to help keep her lungs open) and we are doing small trials off the bipap with high flow oxygen through a nasal cannula. Once she can handle more time on the high flow oxygen, we'll be able to move out of the ICU to the floor. She is very weak and has been sleeping most of the time but we are thankful she remains stable and is getting a little bit better each day.
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