Waiting for an appointment

Waiting for an appointment

Alex is doing much better and she's almost over her latest cold.  She tested positive for rhinovirus again (common cold) but luckily was able to fight it off at home.  She says "hi" to everybody.

Lock Down

We've been home for over a week now and have been busier than ever.  Alex hasn't come back down to her oxygen baseline requirements so we've had several outpatient visits to get things checked out.  Then on Saturday night she became congested once again and we are suspecting a new cold.  Poor thing just can't catch a break. We are waiting to see if a nasal swab she had done shows a new viral infection.  She's managing ok at home but we've had a couple of close calls and have our hospital bags packed just in case.  Needless to say, Alex will continue her hiatus from school and we are going on lock down for awhile.

Nana Carol is here and the girls couldn't be happier.  We've been playing "catch up" every since Alex came home. We've been busy scheduling scopes, clinics, studies and follow-up appointments with several different specialties.  Because Alex was inpatient status, she was discharged from her home physical and occupational therapies and we are in the process of getting those set back up again.  Always a lot to do after a hospital stay.  We had our Christmas celebration at home this past Sunday and it's been back to the grind ever since.            

Home at last

Havin a great day

Alex has been doing great, and she's able to get up and around in her
wheelchair. They're saying if she keeps doing this well, she could get
out as early as tomorrow.