I'm sitting here in disbelief that it's been a month since our last post. Where does time go? We've certainly been busy and hit some speed bumps but we are still hospital free. Alex recently finished a two week dose of antibiotics for aspiration pneumonia. We had been to see the pediatrician a couple of times over a 3 week period for unexplained fever and fatigue and finally pinned down the problem. She's doing much better but the fevers are back as of this weekend. Unexplained fever always seems to put us on edge. It can mean so many things and the spectrum is anything from a typical virus running it's course to an infection requiring a hospital stay and anything in between. We are never sure what to expect and just try to remain positive.
We had a speech consult last week and the therapist recommended that Alex have speech therapy about twice a month. Not too sure how we'll fit 2 extra sessions a month into our schedule but somehow they'll get squeezed in. This will make 11 in-home therapy sessions a month for us. Now you know why we are only posting once a month :)
We have spina bifida clinic tomorrow and since Alex is a little older she now goes to clinic every 6 months. We always look forward to clinic and it really helps shape what the next 6 months will look like for us.
Love,
The Diffees
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6 comments:
Taking a hopeful position, I always take fewer posts as a sign that the Diffee family is busy being a busy young family not requiring hospital time. It is amazing that there are so many resources available now. However, the time demands must be a scheduling nightmare. Thank you for taking precious time to drop a note now and again. We love you all, Richard and Nancy D.
Your detailed updates are great!
We loved seeing you two : ) .
Good luck with the clinic today,
The Womacks
Like mom, I take the the fewer posts to be a good sign. We do love seeing photos when you have the time. Miss each of you and hope to see you soon. Love Vee and T.
How is the HGH going? Glad to see you are hospital free, but sharing your fear with the feavers and aspiration. Being parents is HARD, especially with so much to worry us. You guys are in my thoughts and prayers.
Heyas,
I miss being there. Alex is always a great way to start a happy day. I hope you learn alot during the clinic.
Love,
Nana Carol
visiting you guys in feb, it was amazing to see how resilient and calm you guys are considering this crazy schedule. and alex just seems to go with the flow! you are amazing parents... and she is just precious, i'm so glad we finally got to meet her.
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