Bringing us smiles

Thought I'd share this picture of Ryan that Nana Carol sent me today.  We are so thankful she is here with us and helping us out in so many ways.  This picture of Ryan at the park made me smile.  It was a high of 61 degrees in Denver today.  The hospital is on respiratory restrictions right now and kids are not allowed to visit. So what do we do?  Divide and concur although it's much easier said than done. Missing being together as a family =(  

Staying put for now

The nebulizer treatment we tried this afternoon made Alex a little bit more comfortable and helped keep her out of the PICU. She has copious secretions, requiring frequent suctioning and she has been on her bipap nonstop helping keep her lungs open.  She is probably peaking in her illness so it's not surprising that she is getting worse and her course of illness is typically on the longer end. The real test of if she'll remain on the floor will be how she does tonight.  Nighttime and sleeping are always a challenge with keeping her oxygen levels up and providing additional respiratory support.  Let's hope she has a better night tonight.  We thank you for the prayers and positive thoughts and have felt the love all day =).

PICU bound?

Alex had a rough night and morning and there's a good chance she could be transferring to the PICU. She's on a pulmonary floor but maxed out on her bipap settings and support they can safely provide outside of an intensive care setting. We are trying a couple of medication interventions and then the medical team will reevaluate and determine if she requires escalated care in the ICU to get her through the worst of it. Not the news I was hoping to post.    

Round 2

Alex was admitted to the hospital on Valentine's Day with pneumonia. She also tested positive for a virus so her poor little lungs are struggling.

Good news is she was admitted to the floor this time instead of the ICU.  She's getting vest treatments, suctioning, oxygen and has been on her bipap machine for extra support.  She's in good spirits and being such a little trooper.  Please say a prayer that this is a short stay and she turns a corner soon.  

Home at last

We made it home just in time as a snow storm is moving in.  Alex is cozy playing with her balloons and cuddling with her little friend Sir.  We couldn't be more thankful to finally be home.

Adios Children's

Alex was discharged this afternoon and feeling so much better.  

We are so excited to go home! 

Guess who's here?

Alex told everyone who entered her room today that her Nana was coming to visit.  Then she would ask, "do you want to meet my Nana?"  She's definitely feeling so much better and telling everyone about it.  She weaned off the heated high flow oxygen today to regular oxygen and has not needed to be on bipap all today.  If all goes well tonight, we'll go home tomorrow!!