Home at last

We made it home just in time as a snow storm is moving in.  Alex is cozy playing with her balloons and cuddling with her little friend Sir.  We couldn't be more thankful to finally be home.

Adios Children's

Alex was discharged this afternoon and feeling so much better.  

We are so excited to go home! 

Guess who's here?

Alex told everyone who entered her room today that her Nana was coming to visit.  Then she would ask, "do you want to meet my Nana?"  She's definitely feeling so much better and telling everyone about it.  She weaned off the heated high flow oxygen today to regular oxygen and has not needed to be on bipap all today.  If all goes well tonight, we'll go home tomorrow!!  

Dance Party

So what do we do at the hospital all day and night?  We have dance parties of course.  This is what we've decided to call her vest treatments that shake her up and today we decided to add some music to our party.

Alex had a great day and did 2 four hour high flow oxygen trials.  She is getting stronger every day and and has really turned a corner.  Next we work on weaning her off of the heated high flow oxygen to regular oxygen.    

Moving on up

Yesterday was very busy and started off with a rough morning.  Alex needed more respiratory support overnight and during the day so they were considering keeping her in ICU.  She improved a little in the afternoon so we finally moved to the floor yesterday (Monday) evening.  She has copious secretions and mucous so she's getting a lot of deep suctioning, vest treatments and continues to get extra support from her bipap and heated high flow.  We didn't get much sleep last night because her oxygen saturation kept dropping so we are hoping to make some big strides today while she is awake.  

Nite Nite

All Smiles

Alex is having a good day and is happy as can be with her new Cinderella Barbie.  Her nurse made sure she got an extra special surprise for being the sweetest lil' patient and doing all of her respiratory treatments. She is back on track with her high flow oxygen trials and tolerating almost two hours at a time. Because of the fevers yesterday, she was only able to do one trial.  She woke up with a low grade fever this morning but hasn't had one the rest of the day.  They aren't quite ready to transfer her out of the ICU but we are really close and hoping to move to the floor tomorrow.

Mommy was able to sleep in her own bed last night and be home with Daddy and Ryan for a little while this morning thanks to Cat who stayed with Alex last night and my grandma.  Jimmy came down with an illness the same time Alex did, over a week ago and finally went to Urgent Care this weekend since he wasn't getting better. He's on antibiotics now and they think he has the flu based on his symptoms so he hasn't been able to visit Alex. It's always hard being separated and I'm thankful I was able to spend time with them and give them big hugs. It's easy to feel isolated, not step foot outside for days and feel delirious from lack of sleep when you are staying here.  Looking forward to going home and the family being together again. Situations like this always put things into perspective. We really appreciate all of the love and support we've received.  We'd especially like to thank KK and Katie for bringing us snacks and a home cooked meal tonight and Cat for sleeping at the hospital on her night off.